Comments on: Amanda’s Progress–updates during the first year! http://amandaboxtel.wordpress.com Human Embryonic Stem Cell Therapy Restores Hope for Amanda Sat, 26 Dec 2009 04:30:01 +0000 http://wordpress.com/ hourly 1 By: gautam lakra http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-1056 gautam lakra Mon, 16 Jun 2008 06:00:56 +0000 http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-1056 Hi Amanda, I am an incomplete para T3-4. I am post 8 months. have u noticed any more improvements in june? Should I go for the treatment right now or should I wait for a year when I start platueing? I have sensation in my legs but cannot feel pain or temperature. I have some bowel sensation and also can feel when the bladder is full. Plz advise. Thank you,and keep up the good work. i admire u for ur guts. Warmest regards, Gautam Hi Amanda,
I am an incomplete para T3-4. I am post 8 months. have u noticed any more improvements in june? Should I go for the treatment right now or should I wait for a year when I start platueing? I have sensation in my legs but cannot feel pain or temperature. I have some bowel sensation and also can feel when the bladder is full. Plz advise.
Thank you,and keep up the good work. i admire u for ur guts.
Warmest regards, Gautam

]]> By: Pam Mitchell http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-33 Pam Mitchell Tue, 11 Dec 2007 06:49:20 +0000 http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-33 Have suffered with Borrelia B. and Babesia WA1 for 15 years. Started IV treatment with IV Flagyl, IV azithromycin and IV Rocephin. Oral INH has seemed to keep the cyclical malaria like sweats at bay. When IV therapy and INH are stopped. I go back to square one. I thank God every day for finding Dr. David Martz and Dr. William Harvey who sent my blood work to IGENEX Lab and finally finding me again in 2004. Had a brain rupture in August of 1999. While in the Denver University hospital ICU after left posterior artery rupture on the Circle of Willis was clamped I started feeling great. Since August of 1989 I started my journey to Hell. I had been horse back riding in the hill country of San Antonio and one day later I awakened with a grape size tick attached to the back of my head. My husband removed the tick and we took it into Ft. Sam Houston's Hospital - Brooke Army Medical Center. Being from the state of Wisconsin I was aware of Lyme disease and wanted the tick checked. I was told there was no chance of Borrelia (Lyme) ticks in Texas. From that day forward Brain Fog, Extreme Fatigue, Dizzy Spells, Strange auras of the eye that left me unable to work as an RN. No one could find a thing wrong. After many weeks of blood work I was told nothing was wrong with me. I was a daily jogger, tennis player, gymn bunny, raising three children and working three shifts a week as an OB R.N. This all came to an abrupt stop the day the tick was discovered. I went to a pulmanary doctor with an Oxygen Saturation of 85%. My PFT tests were at 20%. What was going on? I finally asked to see a psychiatrist and 10 minutes with me he felt I was sound and that I had disease or syndrome that they had not diagnosed as yet. I developed floaters in the right eye that obstructed my vision to the point that I was using the left one only. I decided to drag myself to the gymn and start a program that would allow me to excersise. Since I kept developing tumors-- feet, back, cervix. I would have surgery. Recover slowly and back to the gymn. Walking was difficult, but I could Nordic Track and got up to 45 minutes 5 times a week and every other day I would lift light weights. Then go home and sleep for hours. At least I was excercising. My right knee kept swelling and I was told that I had osteoarthritis. When I would lift my head I would almost pass out. Arthritis of cervical spine, and L5 and S1 herniated. Finally in 1999 had the brain rupture. They awakenened me every hour on the hour -- I had not felt so good in 10 years. Little did I know that it was the Rocephin that they were infusing that was helping to kill what I did not know I had at that point. I started rehab. to talk clearly and walk a straight line after the brain rupture and felt my problems were resolved. My husband was reassigned to Ft Sam Houston in San Antonio and after my brain swelling went down I joined him for our 4th tour in San Antonio. Six months later the signs and symptoms that had taken me down prior to the brain rupture returned. This time I saw an infectious disease doctor told him that I thought my problem had been a faulty brain artery. He did run an Elisa test and results were not conclusive. When he found out that I had had two weeks of IV Rocephin while hospitalized with the artery clamping he stated that even if I did have Lyme Disease that the Rocephin I had was enough to kill it. I told him that all the symptoms had returned and now I felt I had malaria. At that he almost laughed me out of the office. He said that my husband and I had never been stationed where Malaria would be a problem. Shortly after leaving his office I decided that my husband and I would not retire in Texas. I wanted to go back to Colorado Springs. Our last tour in 36 years in the Army was back to Ft. Carson, Co. Luckily, there was a Lyme Literate doctor there and I had tests sent to IGENEX Lab--to find I was positive for two types of Borrelia and positive for Babesia Microti and Babesia WA1. My doctor explained I was very sick and had been for years. I wanted to kiss him. I was beginning to think I was a head case. I had three sleep studies, C-pap and By-pap made the apnea worse but straight Oxygen allowed REM sleep. By now my cervical spine was in pain 24/7 and I had to sleep on a love seat because my lower spine would go into spasms if I did not have my knees up. I had the cervical fusion in 2005. The pain relief was amazing and no more passing out when I tipped my head up. In may of 2005 I started the IV therapy and my life became my own. However, I developed a tumor on the ball of my right foot and could not walk. It was removed and it took forever to heal. Now my lower spine was causing the right leg to go numb and getting up from a seated position one day and my ankle was badly damaged. Two months in a cast and two months after in a boot. Then therapy for 20 sessions. The doctor ordered a discogram and found that the L5 and S1 were ruptured and now the lower back is in terrible pain and obstructing lymph flow. The Lyme clinic in the Springs closed in July and I can not get in to see a Dr. R. Stricker in San Francisco until February. I need the surgery, but would not be able to travel by then. Just fell 19 steps Wed. of last week and have left knee imobilized, rt. wrist in brace, hip movement on rt. side limited and bruises from head to toe. I must keep my apt. with the doctor in California. I also need advice on possible stem cell because the IV's are a God Send, but the army doctor read the New England Journal of Medicine article for Oct. 3rd. and feels there is no such thing as chronic Lyme. I begged him to continue Dr. Martz's treatment until I see Dr. Stricker in Feb. If you have any hope for me please write. Thanks a million for your help. Fondly, Pam Have suffered with Borrelia B. and Babesia WA1 for 15 years. Started IV treatment with IV Flagyl, IV azithromycin and IV Rocephin. Oral INH has seemed to keep the cyclical malaria like sweats at bay. When IV therapy and INH are stopped. I go back to square one. I thank God every day for finding Dr. David Martz and Dr. William Harvey who sent my blood work to IGENEX Lab and finally finding me again in 2004. Had a brain rupture in August of 1999. While in the Denver University hospital ICU after left posterior artery rupture on the Circle of Willis was clamped I started feeling great. Since August of 1989 I started my journey to Hell. I had been horse back riding in the hill country of San Antonio and one day later I awakened with a grape size tick attached to the back of my head. My husband removed the tick and we took it into Ft. Sam Houston’s Hospital – Brooke Army Medical Center. Being from the state of Wisconsin I was aware of Lyme disease and wanted the tick checked. I was told there was no chance of Borrelia (Lyme) ticks in Texas. From that day forward Brain Fog, Extreme Fatigue, Dizzy Spells, Strange auras of the eye that left me unable to work as an RN. No one could find a thing wrong. After many weeks of blood work I was told nothing was wrong with me. I was a daily jogger, tennis player, gymn bunny, raising three children and working three shifts a week as an OB R.N. This all came to an abrupt stop the day the tick was discovered. I went to a pulmanary doctor with an Oxygen Saturation of 85%. My PFT tests were at 20%. What was going on? I finally asked to see a psychiatrist and 10 minutes with me he felt I was sound and that I had disease or syndrome that they had not diagnosed as yet. I developed floaters in the right eye that obstructed my vision to the point that I was using the left one only. I decided to drag myself to the gymn and start a program that would allow me to excersise. Since I kept developing tumors– feet, back, cervix. I would have surgery. Recover slowly and back to the gymn. Walking was difficult, but I could Nordic Track and got up to 45 minutes 5 times a week and every other day I would lift light weights. Then go home and sleep for hours. At least I was excercising. My right knee kept swelling and I was told that I had osteoarthritis. When I would lift my head I would almost pass out. Arthritis of cervical spine, and L5 and S1 herniated. Finally in 1999 had the brain rupture. They awakenened me every hour on the hour — I had not felt so good in 10 years. Little did I know that it was the Rocephin that they were infusing that was helping to kill what I did not know I had at that point. I started rehab. to talk clearly and walk a straight line after the brain rupture and felt my problems were resolved. My husband was reassigned to Ft Sam Houston in San Antonio and after my brain swelling went down I joined him for our 4th tour in San Antonio. Six months later the signs and symptoms that had taken me down prior to the brain rupture returned. This time I saw an infectious disease doctor told him that I thought my problem had been a faulty brain artery. He did run an Elisa test and results were not conclusive. When he found out that I had had two weeks of IV Rocephin while hospitalized with the artery clamping he stated that even if I did have Lyme Disease that the Rocephin I had was enough to kill it. I told him that all the symptoms had returned and now I felt I had malaria. At that he almost laughed me out of the office. He said that my husband and I had never been stationed where Malaria would be a problem. Shortly after leaving his office I decided that my husband and I would not retire in Texas. I wanted to go back to Colorado Springs. Our last tour in 36 years in the Army was back to Ft. Carson, Co. Luckily, there was a Lyme Literate doctor there and I had tests sent to IGENEX Lab–to find I was positive for two types of Borrelia and positive for Babesia Microti and Babesia WA1. My doctor explained I was very sick and had been for years. I wanted to kiss him. I was beginning to think I was a head case. I had three sleep studies, C-pap and By-pap made the apnea worse but straight Oxygen allowed REM sleep. By now my cervical spine was in pain 24/7 and I had to sleep on a love seat because my lower spine would go into spasms if I did not have my knees up. I had the cervical fusion in 2005. The pain relief was amazing and no more passing out when I tipped my head up. In may of 2005 I started the IV therapy and my life became my own. However, I developed a tumor on the ball of my right foot and could not walk. It was removed and it took forever to heal. Now my lower spine was causing the right leg to go numb and getting up from a seated position one day and my ankle was badly damaged. Two months in a cast and two months after in a boot. Then therapy for 20 sessions. The doctor ordered a discogram and found that the L5 and S1 were ruptured and now the lower back is in terrible pain and obstructing lymph flow. The Lyme clinic in the Springs closed in July and I can not get in to see a Dr. R. Stricker in San Francisco until February. I need the surgery, but would not be able to travel by then. Just fell 19 steps Wed. of last week and have left knee imobilized, rt. wrist in brace, hip movement on rt. side limited and bruises from head to toe. I must keep my apt. with the doctor in California. I also need advice on possible stem cell because the IV’s are a God Send, but the army doctor read the New England Journal of Medicine article for Oct. 3rd. and feels there is no such thing as chronic Lyme. I begged him to continue Dr. Martz’s treatment until I see Dr. Stricker in Feb. If you have any hope for me please write. Thanks a million for your help. Fondly, Pam

]]> By: aspenamanda http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-26 aspenamanda Sun, 11 Nov 2007 03:08:29 +0000 http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-26 Jeff: Read my most recent post re my improvements. Please feel free to call me at my office at 970-927-3630 to discuss further. Cheers, Amanda Jeff: Read my most recent post re my improvements. Please feel free to call me at my office at 970-927-3630 to discuss further.

Cheers, Amanda

]]> By: JEFF http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-21 JEFF Sat, 20 Oct 2007 19:17:28 +0000 http://amandaboxtel.wordpress.com/amandas-treatment-plan/#comment-21 HI AMANDA: I AM A 20 YR QUAD. I WOULD LIKE TO GET UPDATES ON YOU & OTHERS WHO HAVE BEEN TREATED? HAS YOUR IMPROVEMENT SINCE RETURNING HOME IMPROVED ANYMORE, OR HAS IT PLATEAUED? WILL THE PHYSICIAN BEGIN PUBLISHING OR RELEASING STUDIES ANY TIME SOON? THERE SEEMS TO BE MANY WHO WOULD TAKE ADVANTAGE. CHEERS, JEFF HI AMANDA: I AM A 20 YR QUAD. I WOULD LIKE TO GET UPDATES ON YOU & OTHERS WHO HAVE BEEN TREATED? HAS YOUR IMPROVEMENT SINCE RETURNING HOME IMPROVED ANYMORE, OR HAS IT PLATEAUED?
WILL THE PHYSICIAN BEGIN PUBLISHING OR RELEASING STUDIES ANY TIME SOON?
THERE SEEMS TO BE MANY WHO WOULD TAKE ADVANTAGE.

CHEERS,

JEFF

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